- The survey was conducted on 3,579 adults with Parkinson’s disease, including 3,087 patients and 492 caregivers.
- 30% of patients surveyed had perceptual disabilities.
Parkinson’s disease is the second leading cause of motor impairment after stroke. However, 70% of people who have had this neurodegenerative condition for more than ten years do not benefit from recognition of a disability. This was revealed by a survey conducted by Opinionway of the Association of Parkinson’s patients in France, which was presented on March 24 at a press conference.
“If this recognition is not necessary in the early years of the disease, the neurodegenerative nature of the pathology necessarily leads to a long-term loss of autonomy,” Assembly said. According to Frans Parkinson, there are five factors that can explain this lack of recognition, without any justification.
1/ The age limit for recognition of disability
The association specifies that the 60-year age limit immediately excludes adults diagnosed after 60 years. “The latter will no longer be able to obtain the status of a disabled person granted by the Department of Persons with Disabilities. We then talk about the loss of autonomy associated with old age, while the onset of disability is in no way related to the person’s age, Can we read the poll?
2 / Not organizing the procedures
The survey reveals that the evolving nature of the loss of autonomy precludes any regulation of actions. Unlike disability associated with a stroke, road accident, or neurodevelopmental condition that occurs immediately, the onset of disability associated with Parkinson’s disease is gradual but also random, depending on the effectiveness of treatments or the degree of damage to the disease.
3/ The complexity of administrative procedures
The procedures for asserting the rights of patients with this neurodegenerative condition are administratively complex. According to the association, patients do not necessarily have standards in the field of disability and social medicine in general.
4 / Denial of disease by patients
“There is a form of denial in some patients, as for them accepting a disability equates to a form of giving up the struggle against disease. This prevents them from initiating the lengthy administrative procedures that are often necessary to acknowledge the disease. Incapacitation.”Frans Parkinson explains.
5/ Different practices from one department to another
The survey identifies that departmental home practices for people with disabilities may vary from department to department. The result: many claimants face difficulties in asserting their rights with this organization, depending on where they reside.